FUMS is a podcast providing information, inspiration, and motivation for living your best life with Multiple Sclerosis. Join us for interviews with doctors, research scientists, patients, legislators, insurers, neuropsychologists, authors, caregivers, and a long list of others in our pursuit of answers. Learn to speak to this disease as it deserves – tell it “FUMS” every day!

Episodes

September 21, 2021 - 40 MIN

FUMS 089 - MS, COVID-19 Vaccines, and the Booster Shot with Dr. Brandon Beaber

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Well, COVID-19 doesn't seem to be going away anytime soon, does it? You had questions about the COVID-19 vaccines and booster shot and Dr. Beaber had answers. Dr. Brandon Beaber is a board-certified neurologist with subspecialty tra.. Read More
Well, COVID-19 doesn't seem to be going away anytime soon, does it? You had questions about the COVID-19 vaccines and booster shot and Dr. Beaber had answers. Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He posts new videos about MS on YouTube every Wednesday AND he has written a book that features amazing stories and practical advice to enable people to develop resilience as they live with MS. In my conversation with Dr. Beaber, we also talk about diet, exercise, and the potential benefits of dirt! Topics covered in this episode include:COVID-19 and MS - Are people with MS more at risk or are we better protected than the 'normals'? How do the various vaccines interact with MS DMTs?What Dr. Beaber thinks MSers should do about receiving COVID booster shots  Dr. Beaber's thoughts about the numerous diets which are supposed to help MSers - and his cautious recommendationsWhy exposing yourself to a little bit of dirt might be good for what ails ya!The counterintuitive benefits of exercise in combating MS fatigueDr. Beaber's book, "Resilience in the Face of Multiple Sclerosis" - and how you can get a free download Full shownotes and resources at https://fumsnow.com/fums089
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September 07, 2021 - 37 MIN

FUMS 088 - Psychedelic Experiences, Frogs, and MS - with Neurobiologist Caitlin Thompson

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I, like many of us, have been watching with interest the current research into the potential benefits of psychedelics in the treatment of depression - because, obviously, depression is pretty common when you're dealing with a life-ch.. Read More
I, like many of us, have been watching with interest the current research into the potential benefits of psychedelics in the treatment of depression - because, obviously, depression is pretty common when you're dealing with a life-changing MS diagnosis! Maybe like me, you asked yourself, "Hmmm. I wonder if anyone has been looking into its potential usage for chronic illnesses like MS?" Well, guess what?! Neurobiologist Caitlin Thompson is an independent scientific researcher studying the potential of psychedelic compounds as a novel approach to the treatment of autoimmune conditions. During her healing process from Lyme disease, chronic fatigue, PTSD, pain, and a plethora of other autoimmune symptoms, Caitlin became fascinated with the potential of using psychedelic substances to treat and relieve autoimmune and chronic health conditions. She is also an active practitioner and educator of Kambo, a traditional Amazonian medicine. Please note It should be noted that much of the research so far is anecdotal at best, and there remain a number of questions that need to be answered about efficacy, safety, and the long-term effects. However, this is potentially a really interesting area for further study. Full show notes at https://fumsnow.com/fums088
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August 24, 2021 - 40 MIN

FUMS 087 - Let's Talk About Sex - and MS - with Dr. Fred Foley

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There are countless ways that MS can MesS with your life. But one of the most infuriating, most common, and most difficult to talk about, is sexual dysfunction.  Obviously, this is something that can affect anyone. But a shockin.. Read More
There are countless ways that MS can MesS with your life. But one of the most infuriating, most common, and most difficult to talk about, is sexual dysfunction.  Obviously, this is something that can affect anyone. But a shocking 80% of people with MS report having sexual concerns or issues. The symptoms can include loss of sensation to an inability to climax, and the causes can run the whole gamut from depression, poor body image, and medications to treat your MS and associated conditions. So Dr. Fred Foley is here to help you bring your sexy back! Dr. Foley is Professor of Psychology at Yeshiva University, in the Bronx, NY, and the Director of Neuropsychology and Psychosocial Research at the Multiple Sclerosis Center at Holy Name Medical Center in Teaneck, NJ.  The most important thing to learn from this podcast is that there are lots of ways you can still get busy and get happy! But the key is communication - with your partner, your doctor, and healthcare professionals. So Dr. Fred also offers guidance on how to do that. Full show notes and resources at https://fumsnow.com/fums087
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August 10, 2021 - 49 MIN

FUMS 086 - Funny Shit About MS with Comedian Shari Short

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If you’ve been following us for any amount of time, you’ll know that we always give a big FU to MS (the clue’s in the name!) And even though we’ll have our ups and downs, we try to inject a little humor along the way. Now, w.. Read More
If you’ve been following us for any amount of time, you’ll know that we always give a big FU to MS (the clue’s in the name!) And even though we’ll have our ups and downs, we try to inject a little humor along the way. Now, we know that MS is NO JOKE. But if you allow yourself to see the funny side of it occasionally, it can help with getting through the day-to-day. My guest this week is Shari Short, a comedian, writer and, naturally, a developmental psychologist working in healthcare communications. Since her MS diagnosis in 2008, Shari has used humor to deal with MS, communicate about MS and cope with MS - and she thinks that you might benefit from doing the same.  Topics covered in this episode include:The story of Shari’s MS diagnosis and and her experiences of injecting her first MS DMTHow she got into comedy and where it fits into her lifeWhy Shari thinks that humor was helpful in her diagnosis and continues to be in her life with MSHer first experiences doing standup and how she manages her symptoms when performingThe “Crazy Cane Lady Letter Series” and other satirical writingShari’s opinions about how MS is portrayed in the media Full show notes and resources at fumsnow.com/fums086.
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July 27, 2021 - 23 MIN

FUMS 085 - Amber Tuma Talks About MS & Her Rock & Roll Lifestyle

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Amber Tuma was studying for her music degree in Texas and raising two kids with her husband when MS reared its ugly head. So she says FU to MS by continuing to write and play music with her band The Gallows Crow. Hear the inspiratio.. Read More
Amber Tuma was studying for her music degree in Texas and raising two kids with her husband when MS reared its ugly head. So she says FU to MS by continuing to write and play music with her band The Gallows Crow. Hear the inspirational story of how Amber refuses to let MS get in the way of how she lives her life. Go, Amber! Topics covered in this episode include:Amber’s life pre- her MS diagnosisThe story of her initial symptoms, her quick diagnosis, and an unknown link to MS  How Amber handles the emotional and physical stresses of playing music, including the story of the gig she played shortly after her diagnosisHow Amber’s friends and family members have responded to her diagnosisAmber’s aspirations, and plans to write a song about MS Resources for this episode (clickable links):Visit The Gallows Crow and follow them on Instagram and FacebookListen to Kathy’s song, Wash Your Mouth Out With HopeHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchSign up for the Patients Getting Paid course email waiting listGet the “Bowel and Bladder Issues in Multiple Sclerosis by Two Pee Brains With Potty Mouths Talking Shit About MS” ebook** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com
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Hosted By:

Kathy Reagan Young