FUMS is a podcast providing information, inspiration, and motivation for living your best life with Multiple Sclerosis. Join us for interviews with doctors, research scientists, patients, legislators, insurers, neuropsychologists, authors, caregivers, and a long list of others in our pursuit of answers. Learn to speak to this disease as it deserves – tell it “FUMS” every day!

Episodes

November 30, 2021 - 20 MIN

FUMS 094 - The National MS Society's MS Navigators Program

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For most of us in the US, when we join the lucky MS'ers club, the first place we turn is likely to be the National Multiple Sclerosis Society. The National MS Society's vision is a world free of MS - something which we can all get b.. Read More
For most of us in the US, when we join the lucky MS'ers club, the first place we turn is likely to be the National Multiple Sclerosis Society. The National MS Society's vision is a world free of MS - something which we can all get behind! But while the bastard refuses to die, they also focus on ensuring that people affected by MS can live their best lives. One of the ways in which they do this is the MS Navigator program. The Navigators exist to connect you with the help you need, wherever and whenever you need it. To tell us more, my guest today is Allison Krehbiel, the Director of MS Navigator Services Delivery. Allison provides leadership to the nationwide team of MS Navigators who receive direct referrals from healthcare providers - utilizing the power of collaboration to improve client outcomes. Allison has been with the National MS Society since 2005 when she started as a contracted Case Manager. She received her Masters in Social Work from the University of Washington and has a certificate in non-profit management and in Diversity, Equity, and Inclusion. Topics covered in this episode include:The reasons why the program was startedDo the Navigators need to have a connection to MS?Examples of the different ways in which the program can help people with MS - including disability benefits and employment issuesThe training which is involved for NavigatorsHow to connect with the MS Navigator program Full show notes and resources at https://fumsnow.com/fums094/
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November 16, 2021 - 40 MIN

FUMS 093 - Eating Healthy Over The Holidays with Alene Brennan

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As the song says, it’s the most wonderful time of the year! And many of us traditionally mark the season - and please know that the FUMS Podcast is a no-shame space - by giving up on eating and living in a healthier way.  But inc.. Read More
As the song says, it’s the most wonderful time of the year! And many of us traditionally mark the season - and please know that the FUMS Podcast is a no-shame space - by giving up on eating and living in a healthier way.  But increasingly, many of us living with MS and related chronic conditions are managing our health through nutrition and lifestyle. So how do we keep this up without missing our family traditions? Luckily, Functional Nutrition Counselor and Chef Alene Brennan is on-hand to show us the way. Alene knows first-hand what it’s like to live, and rise above, a chronic illness and debilitating migraines. Following her diagnosis with Multiple Sclerosis in 2016, she now coaches individuals from around the world to manage autoimmune disease through diet and lifestyle. Listen in as she shows us that we don't have to compromise our healthy habits during the holidays to enjoy this special season. Topics covered in this episode include:Why Alene feels that it’s important to focus on what’s manageable for you to maintain a healthy lifestyle during the festive holidaysAlene’s thoughts about the different diets which are believed to help with autoimmune conditions - including the Wahls protocol, and plant-based and gluten-free diets. How should we balance out conflicting advice?Why it’s not enough to eat badly and exercise moreHow adopting a more mindful approach to your diet can help you to maintain your important family traditions and ritualsWhere to find out more about Alene and the work she does Resources for this episode (clickable links):Visit Patients Getting PaidIf you’re getting value from FUMS, please consider leaving a review wherever you’re listening nowHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchGet your copy of Kathy’s ebook with Erin Glace: "Bowel and Bladder Issues in Multiple Sclerosis by Two Pee Brains With Potty Mouths Talking Shit About MS"Listen to Alene’s previous appearances on the FUMS Podcast Show: Episode 061 – Essential Oils and MS with Alene Brennan and Episode 017 – Autoimmune Health Coach Alene BrennanFUMS episodes on Wahl’sTo learn more and receive free resources, visit Alene’s website at www.lesspharmmoretable.com Follow her on Instagram @lesspharmmoretable and on YouTube ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com
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November 02, 2021 - 54 MIN

FUMS 092 - Music Therapy For MS with Dr. Cindybet Pérez

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If you're anything like me, music is a big part of your life. It can lift me up, it can wipe me out, but it's always there. And you'll likely also have seen incredible videos which show people with Dementia or Alzheimer's responding .. Read More
If you're anything like me, music is a big part of your life. It can lift me up, it can wipe me out, but it's always there. And you'll likely also have seen incredible videos which show people with Dementia or Alzheimer's responding to music when they otherwise are non-responsive. But did you ever think that music could make a difference to the health of people with MS? Dr. Cindybet Pérez is a board-certified clinical and neurological music therapist practicing in Puerto Rico. A faculty member at the Pontifical Catholic University, she also participated in a national-level project specially designed to promote health and wellness through evidence-based interventions for MS patients called MS in Harmony. In our fascinating conversation, Dr. Cindybet talks about how music therapy can help MS patients cope with their diagnosis, becoming another potential weapon in our arsenal - not simply lifting our mood but improving our movement and memory! Topics covered in this episode include:How Dr. Cindybet persevered to use her musical gift to help people, despite a lack of awareness of the benefits of Music Therapy in Puerto RicoWhy Music Therapy can be particularly effective for those newly diagnosed with MS, and how Dr. Cindybet adapts her work to the individual needs of each patientThe reasons why you should pay attention to song lyrics - evaluate the message as well as the rhythm and the feelThe power of playlistsDr. Cindybet's work on the national MS in Harmony project Resources for this episode (clickable links):Visit Patients Getting PaidIf you’re getting value from FUMS, please consider leaving a review wherever you’re listening nowHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchDownload Kathy’s song, “Wash Your Mouth Out With Hope”Connect with the Puerto Rico Music Therapy Institute on FacebookLearn more about the MS in Harmony projectVisit the Certification Board for Music Therapists   ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com
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October 19, 2021 - 44 MIN

FUMS 091 - Move It Or Lose It with MS Specialist Fitness Trainer Kathy Chester

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“Which part of our body are you ok with losing?” - this is the question that fitness trainer Kathy Chester will sometimes ask her clients. Prior to opening Disrupt Fitness Gym, Kathy had been a leader in the fitness industry for.. Read More
“Which part of our body are you ok with losing?” - this is the question that fitness trainer Kathy Chester will sometimes ask her clients. Prior to opening Disrupt Fitness Gym, Kathy had been a leader in the fitness industry for almost a decade. However, it wasn’t until she was diagnosed with Multiple Sclerosis that she decided the time had come to take it to the next level.    Having MS while being an instructor has allowed Kathy to not only push past places she'd been told she would never physically reach but has provided her with the gift of offering encouragement while working through different adversities with her clients. And why did she choose the name “Disrupt” for her gym? Well, that’s because she’s disrupting the idea of what we can and cannot do with MS and related autoimmune conditions. In other words, she says FUMS every day! Topics covered in this episode include:How Kathy relished speaking to groups in her former life as the wife of a pastor - and why she used humor to cover her initial MS symptomsHow a huge relapse coincided with the end of her first marriage and the ways in which Kathy handled dating with MSWhy she decided to change her fitness practice to focus on helping people with autoimmune conditions - and the reason Kathy decided to stop training in other venues and begin working with clients in her garageWhy Kathy’s fitness practice is as much about emotions as it is about movementThe difficulties of running a business (and getting paid) within the autoimmune communityWhy Kathy decided to launch her own podcast and where you can find out more about her and her work Resources for this episode (clickable links):Visit Patients Getting PaidVisit Disrupt Fitness Follow Disrupt Fitness on Facebook and InstagramListen to the Move It Or Lose It podcastListen to Kathy Reagan Young on the Move It Or Lose It podcast - Part One and Part TwoIf you’re getting value from FUMS, please consider leaving a review wherever you’re listening nowHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS Merch ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com
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October 05, 2021 - 38 MIN

FUMS 090 - Heat Intolerance and Exercise with MS Specialist Dr. Gretchen Hawley

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It’s a third-time visit for MS-specialist Physical Therapist Dr. Gretchen Hawley. She began treating people with Multiple Sclerosis during her first year of professional practice. The positive results she saw in her patients led he.. Read More
It’s a third-time visit for MS-specialist Physical Therapist Dr. Gretchen Hawley. She began treating people with Multiple Sclerosis during her first year of professional practice. The positive results she saw in her patients led her to specialize in the treatment of MS, taking every opportunity to attend workshops and conferences dedicated to improving lives through Physical Therapy. She has previously appeared to talk about the benefits of PT for People with MS, and the launch of her online MSing Link wellness program - which coincided with the global COVID-19 shutdown.  I’ve been hearing her name mentioned in lots of MS-related areas recently, so she’s back to talk about all the exciting things she’s working on now - including the launch of her own podcast, and a FREE 5 Day MS Strength Challenge!How Dr. Gretchen’s online MSing Link Wellness program has helped people all over the world - and the importance of accountability as an aid to achieving health goalsWhy heat intolerance affects so many people with MS - along with tips and tricks to help us to deal with itWhat is Neuroplasticity? And why is it relevant for people with MS?The counter-intuitive benefits of light to moderate exerciseWhy Dr. Hawley decided to start a podcastDetails about how you can sign up for Dr. Hawley’s Free 5 Day MS Strength Challenge Resources for this episode (clickable links): Visit Patients Getting PaidDr. Hawley’s two previous appearance on the FUMS Podcast: FUMS 022 – Benefits of Physical Therapy for MS with Dr. Gretchen Hawley and FUMS 074 – Dr. Gretchen Hawley Providing the MSing Link for MS with PTPrevious FUMS podcast episode about the ThermApparel Undercool Cooling Vest: FUMS 059 - A Solution for Heat Sensitivity in MS Dr. Hawley’s MSinglink websiteListen to The MSing Link podcast Learn about the Free 5 Day MS Strength Challenge Visit Gretchen on YouTube, Instagram and FacebookIf you’re getting value from FUMS, please consider leaving a review wherever you’re listening nowHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS Merch ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com
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Hosted By:

Kathy Reagan Young