FUMS is a podcast providing information, inspiration, and motivation for living your best life with Multiple Sclerosis. Join us for interviews with doctors, research scientists, patients, legislators, insurers, neuropsychologists, authors, caregivers, and a long list of others in our pursuit of answers. Learn to speak to this disease as it deserves – tell it “FUMS” every day!

Episodes

May 17, 2022 - 27 MIN

FUMS 106 - Caring for Caregivers with Elizabeth Miller

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If you listen to this podcast, there's a strong chance that you receive care - from a friend, a loved one, or from within your community. You might also be in the position I was in a few years back, caring for elderly relatives, youn.. Read More
If you listen to this podcast, there's a strong chance that you receive care - from a friend, a loved one, or from within your community. You might also be in the position I was in a few years back, caring for elderly relatives, young children, and myself as a person with a chronic illness! My guest today is Elizabeth Miller, a family caregiver, caregiver advocate, speaker, author, podcast host, and Certified Caregiving Consultant. Her personal experiences of caring for aging parents with chronic and terminal illnesses and for a sibling with developmental disabilities inspired her to create Happy Healthy Caregiver in 2015. Elizabeth's aim is to make caregiving sustainable and prevent burnout by encouraging intentional self-care. Like I said, you might be a caregiver or the one receiving care. Regardless, there are some great tips in our conversation for looking after yourself. And please remember that self-care is not selfish! Topics covered in this episode include:The story of Elizabeth's history with caregiving and what her hardest challenges wereHow sharing her story through a blog enabled Elizabeth to help others in the same situationElizabeth's advice for caregivers and the things which helped her to look after herselfChanges that Elizabeth would like to see in the healthcare systemThe services and support that Elizabeth provides through Happy Healthy Caregiver Full show notes and resources at https://fumsnow.com/fums106/
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May 03, 2022 - 27 MIN

FUMS 105 - Finding "Grace" in MS with Novelist Delaney Parker

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"Grace" is a novel about a young woman navigating married life, sex, parenting, and friendship. Plus, the lead character is doing all this while dealing with an MS diagnosis.  It was written by Delaney Parker, an author who lives i.. Read More
"Grace" is a novel about a young woman navigating married life, sex, parenting, and friendship. Plus, the lead character is doing all this while dealing with an MS diagnosis.  It was written by Delaney Parker, an author who lives in upstate New York with her family. She was diagnosed with Multiple Sclerosis in October of 2008, and it was her diagnosis that inspired Delaney to write "Grace." As Delaney says in this interview, the character's diagnosis is just a part of who she is, and the novel is not centered around MS. I loved this book's depiction of a young woman who just happens to have MS, and I can't wait for the sequel! Topics covered in this episode include:Delaney's diagnosis with MS while being a young motherHow her urge to be a writer grew out of a voracious reading habitWhy an MS diagnosis is not the main driver of the plot of "Grace"How sharing this story was helpful to Delaney in her own MS journeyWhere to buy your copy of "Grace" Full show notes and resources at https://fumsnow.com/fums105/
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April 19, 2022 - 35 MIN

FUMS 104 - Trauma and EBV as the Trigger for MS w/Tammy and Terry of Twins Coast 2 Coast

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Identical twins Tamara Kahn and Terry Hord (née Harber) were born eight minutes apart and were both athletic as children. But they can now look back and see the fatigue and heat sensitivity they both experienced as early signs of th.. Read More
Identical twins Tamara Kahn and Terry Hord (née Harber) were born eight minutes apart and were both athletic as children. But they can now look back and see the fatigue and heat sensitivity they both experienced as early signs of the diagnosis to come - along with the trauma of losing their mother to cancer and the Epstein-Barr Virus that they contracted at the age of 15. In their 20s they received identical MS diagnoses, but a history of voluntary charity work led them to create an MS patient advocacy hub called TwinsCoast2Coast. They aim to inspire, empower, support, and educate others about MS, and to simply tell their story, imperfections and all. Despite the aggressive and progressive nature of MS for them both, they continue to create a support system and safe space for the newly diagnosed to land. As they say in this interview, "there is more to life than your disease - and you are not alone." Full show notes and resources at https://fumsnow.com/fums104/
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April 05, 2022 - 39 MIN

FUMS 103 - Diet and Lifestyle to Halt Your MS w/Dr. Terry Wahls

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The idea of using diet and lifestyle changes as a way to manage MS was still pretty radical until fairly recently. But as more research is done, the benefits are becoming more recognized day-by-day. My guest today is Dr. Terry Wahls.. Read More
The idea of using diet and lifestyle changes as a way to manage MS was still pretty radical until fairly recently. But as more research is done, the benefits are becoming more recognized day-by-day. My guest today is Dr. Terry Wahls, who has been studying the links between lifestyle and MS outcomes since getting her first symptoms twenty years ago. After being confined to a tilt-recline wheelchair, Dr. Wahls restored her health using a diet and lifestyle program of her own devising. Dr. Wahls previously appeared on the FUMS podcast back in 2018, so I figured it was time to get her back. I wanted to find out about recent clinical findings about the efficacy of diet and lifestyle as a way to treat multiple sclerosis - which is increasingly gaining traction as a recognized way to manage your health!  We also talk about the findings of recent studies into Paleo, Swank, and Mediterranean diets. Full show notes and resources at https://fumsnow.com/fums103/
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March 22, 2022 - 42 MIN

FUMS 102 - GYST: Estate Planning with MS part 2

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This episode is the second part of my interview with Marty Shenkman, an attorney whose private practice concentrates on estate planning. When his wife was diagnosed with MS, he recognized how different planning looks for people with .. Read More
This episode is the second part of my interview with Marty Shenkman, an attorney whose private practice concentrates on estate planning. When his wife was diagnosed with MS, he recognized how different planning looks for people with chronic illness and it changed his whole approach to estate planning.  If you haven't heard the first part, please visit https://fumsnow.com/fums101 When I announced that I'd be talking to Marty about estate planning with a chronic illness, I was inundated with questions from the FUMS community. So in part two of my interview, we try to get through as many of them as possible.  As Marty says, the answers he gives here are for educational purposes only and are intended to give you a broad overview of the issues you might face. They should not be used as a substitute for personally tailored, professional advice.  Thank you, Marty, for how generous you were with your time. We've barely scratched the surface, so I'm looking forward to having you on the podcast again soon! Full show notes and resources at https://fumsnow.com/fums102/
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Hosted By:

Kathy Reagan Young